Thursday, February 13, 2014

The Waiting Room

Have you ever sat in a waiting room? Waiting for the doctor to come back in and tell you what's wrong with you? Waited for test results? Waiting for endless hours as your child burns with a fever and cries because they are in pain, and yet there is absolutely nothing you can do to fix it? Your foot taps nervously without your notice. Your stomach churns. You feel desperate, out of control. You pray constantly without words but with cries for help. The cry of please, please Lord. Because He knows your heart. He knows the struggle you can't breathe into words.

I'm stuck in a waiting room right now. I have no idea how long I will be made to wait. They say 2-4 weeks. If feels more like a lifetime. See I'm waiting for my future son or daughter to be born. I'm waiting for the phone to ring. Waiting for my caller ID to say DHS. Waiting for the words that will come while I silently pray, Please God Please.... As I listen I will forget to breathe. Everything else will fade away. The noise of the children at home around me, the dish I was just about to put into the sink, all that, all that will just be gone. I'll feel that deep sick to my stomach feeling that comes with adrenaline, fear, and silent hope, all mixed together. I can hear my heart in my own ears racing on faster and faster. Still I will forget to breathe. I wont remember to do so until I hang up.  I know this is how it will be because I've been here before. But this time....This time is different.

Last time in the waiting room I was full of hope and excitement. My biggest worry as I answered the call I had been waiting for was if drugs would be on board at the time of birth. Even with just that small worry the world paused for me when I answered the phone. That mix of fear and excitement were coursing through me. My heart leapt forward without me. I heard her say that he's here. He's good. Mom managed to stay clean the last 3 weeks since she took off from treatment. He looks just like his brother! He has a clubbed foot though. The nurse said its a pretty significant one but thankfully its just one of his feet and not both.....

Two minutes go by as she tells me the details of who I will hear from when it's time to pick him up from the hospital. I hang up. I realized I had been holding my breath as I frantically called Husby and shared the news. I went immediately to my computer to look up what a  clubbed foot was and what treatment would look like. I discover that it means 6-8 weeks of on going full leg casts from hip to toe. I realize it means weekly appointments. It will mean having to get creative with clothing and mobility. It will mean a baby who is upset by confinement. I remember the small passing thought of how I won't be able to carry him in a ring sling like I was looking forward to. I went on to read he will wear braces on his feet until he is 4 years old. 4 years old?! His development may look different as he's learning to roll over, sit up, crawl and walk. I called my besties. Asked their advice. Could I do this? Would they help? When you have a ton of kids logistics come into play. How will I take 6 kids to the doctors office weekly for casts? I'll need to farm them out. Besties say that got me covered. I say a prayer of thanksgiving for the people in my life that the Lord has blessed me with. It takes a village to make this calling on my life possible. And let me just tell you, I have the world's best village.

Two weeks of little mans life go by. The phone rings again. This time it's his pediatricians office. There's a problem they say. This time the world around me goes into slow motion. That feeling of adrenaline and sickness comes back in full force. He has several markers for Cystic Fibrosis that came back on his PKU testing that was done at birth they say. Another test will be needed to confirm it. We schedule the appointment. I hang up. It feels like I may never breathe again. One phone call has altered the course of my life, and my child's. I sit down at the computer again to start looking up what cystic fibrosis is what it will mean for him while I call Husby on the phone. I bust into tears the second he answers. I read on. I see the words through blurry eyes. No cure. Life shortening. Life expectancy 37. Some CF children don't survive through childhood. Digestive and lung issues. Frequent hospitalizations. The list goes on....

I find myself wishing that his clubbed foot was once again my biggest worry for him. There was a moment after the original phone call that I wondered if the clubbed foot would be too much for me. Could I manage all that entailed while raising my other 6 children? I see now that God was preparing me. He had to bring me through that before I could face his cystic fibrosis diagnosis. From that moment on I had to hand it over. It was too big for me. It continues to be too big for me. But it's not bigger than God. It's not too much for Him. Thankfully He is my measure and my portion. He gives me what I need when I need it. He fills my cup, and my cup runneth over. This child is my joy. An ever abundant blessing. I'm thankful to be part of his journey. God has chosen this little one just for me, and me for him. God's got me covered.  He has my back. And yet...

I sit in life's waiting room once again. I'm having trouble leaving the room. The stakes are much higher this time. The fears reality. I feel stuck here as I wait for the phone call that will pause my world as I hear the words that will determine my babies life long struggles. But that's just it. I have absolutely no doubt that I'm supposed to be in this very waiting room, waiting for this special baby. I know in my heart that we have been called to parent this child along with our 7 other blessings. I know it sounds crazy. But this is our brand of crazy. You have your own crazy, trust me you do, and I have mine. This is the life He has laid out before me and it humbles me to the core that He trusts me with it.

So here I sit, and here I wait. I pace the waiting room floor. There are grooves worn where I tread. I lift up prayers that this little one will defy all the odds stacked against them. I internally panic each time my phone rings or an email comes through. I know the moment is coming. I can't help but worry non stop for this child.  It's hard to have no control, to have no information. Knowing someone else is making unacceptable choices with your child's life in utero.... It's too much. It's way too much for me. But once again it's not too much for Him. So I'm going to try to curl up in His lap as I wait in this waiting room for this child that He all ready knows. Please come wait with me. Offer up prayers for this sweet little one. Prayers that defy the odds, prayers of protection, prayers for peace, and for a constant understanding that despite this being too much for me, He's got this. And he's got me. 

Wednesday, February 12, 2014

The End is the Beginning is the End

Not quite sure why the title to an old Smashing Pumpkins B-Side came to mind when I sat down to begin my first blog post. I guess it always comes back to a song for me. Music finds its way into the weave of my every day life. I love how a song can take you back to an exact moment in your life. How it brings back the way you felt, the way something smelled, the person you were with.  I was just thanking God today for the gift of being able to connect with Him in worship through music. Music is a powerful thing. It can freeze a moment forever, it can be in the background of an adventure, it can clarify, it can connect, it can make you move. Music makes you think,  helps you feel, it can describe what you couldn't put in words yourself. Music, it can change the world. It has changed mine.

On my drive home from Costco today Wonderful Tonight by Eric Clapton came on the radio. It brought me right back to eleventh grade. The first time I ever heard that song was at a friends Christmas party. It was also the first party I had been to with a live DJ. Pretty fancy stuff. You couldn't help but feel there was magic in the air. There were even twinkly white Christmas lights for goodness sake. There is something to be said about young teenage love and trying to haphazardly apply the meaning of lyrics to how you are feeling that exact moment in time. I fell for the easy simplicity of a complex thing that Wonderful Tonight encompasses. All these years later it still gives me a flood of warmth, romantic thoughts and unsaid feelings. When giving the DJ for our wedding reception a list of songs we wanted in the mix that night this song definitely made my cut. Almost 13 years have passed since our wedding night. I still find myself learning more about love with each passing year. I can't help but wonder how much my view and understanding of love will change over the next 13 years. All I know is that I choose the very best partner for this crazy adventure. No one else could handle my brand of crazy like this man does.

In our dating days and early years of marriage we use to go to as many concerts as we could together. Somewhere along the line it went from seeing U2, Counting Crows, and Roger Waters, to The Wiggles Live in Concert. As we quickly added more children to our family the days of concert going fizzled out all together. But this year that began to change. We took the oldest 4 kids to Winter Jam 2013 for Katie's 7th Birthday up at the Portland Rose Garden. This tour had loads of our favorite Christian bands playing including David Crowder, 10th Ave North, and the Newsboys. There is just something to be said about live music.  I forgot that truly unique feeling of thousands of people all singing the same song together at the top of their lungs. The feeling of connection with thousands of people coursing through your blood as the sound of the drum kit echoes in your heart. I can't help but wonder if this will even begin to touch the feeling of worship at the feet of the Lord in Heaven. When all the saints will sing in one voice in everlasting worship of the One True King. If this deep feeling of connectivity and longing at a rock concert can even begin to show us a taste of whats to come all I can say is bring it on!

This experience in November relighted a fire in me. This along with the fact that U2 will be releasing a new album this year since their last one back in 2009. I'm determined to reclaim the fun and adventure of attending concerts with my man. We are kicking off this renewed desire with our Valentine's gift to each other. We purchased Bruno Mars tickets for August and we are going to run from there. It's time to put the music back in our marriage adventures! We are dreaming up where to go see U2 when they tour. We want to go somewhere we have never been before for at least one of the times we see them on their upcoming tour. It's nice to bring back the spirit of adventure. Just us and thousands of others, gathering together in unity for a taste of eternity...

Wonderful Tonight Live
Children are a heritage from the Lord, offspring a reward from him. Like arrows in the hands of a warrior are the children born in one's youth. Blessed is the man whose quiver is full of them. -Psalm 127:3-5